Courtney and I were talking in her bed tonight. She is attached to a stuffed puppy she has named "Puppy". Coincidentally, this is the same stuffed puppy that my mom brought to me when I was in the hospital on bed rest with Courtney. I missed my real dogs terribly, and my mom thought the stuffed Puppy would do me some good. He slept with me every night and was with me when Courtney was born. We brought him home and put him up on the shelf in Courtney's room that has other meaningful items on it. She decided over a year ago, she wanted that puppy down. Out of the 20+ stuffed animals up there, that was the one she wanted. And now, it's "her puppy". Her one and only prized possession that has to be with her in bed every night. He also rides in the car with her a lot. I just think it's so cool that she chose the one animal that was directly significant to her. Tonight she was asking me 10,000 questions about where puppy came from, and why was I in the hospital, and how did she get in my belly, etc. It's easy to answer questions like that for a 4 year old. I dread it when she gets older and demands more of an answer than: God put you there.
She has been cracking me up lately. Yesterday she was telling Kasey to follow her. She was drawing on her little Magna-doodle and walking around. She kept telling Kasey "come on, we are going to walk to China". This morning she woke me up with a map that she had drawn to show us how to get to Florida. Do we have a world traveler on our hands?
Yesterday, she had an appointment with the Pediatric Geneticist people. They come down from Denver once and month, and it took us over a year to finally get in to see them. They are going to screen Courtney's genes for anything we may have missed. This is just kind of another step for ruling anything out. With her diagnosis, it's been a lot of ruling other things out to confirm what she does have. Kind of backwards from the usual way of doing things.
Anyway, we had to go over her whole history with them. Jeez, it's a lot. She has had just about every test under the sun. I don't even remember how many times Apria was dropping off equipment at our house for one test or another. (Thank goodness for Apria.) They really don't expect to find anything with her genes, but it's always good to check and to rule out missing anything.
They want to see her back in a year, and my guess is that they are going to follow her for a couple of years (I am thinking 5+) to watch her genes and see if anything shows up, either with new technology, or something that was missed before. I think it will kind of be interesting to see what happens there.
So, in a few weeks she is going to have to have some more blood draws and urine tests. Yea. That's always fun with a 4 year old. Hopefully Hubby will be around so that he can hold her for the blood draws. The bigger she gets, the harder she is to hold still!
Kasey and I are both fighting colds. I took her to the doctor's today because she started with a fever last night, even though she has had the cold a few days now. I fully expected them to find an ear infection. NOPE! No strep either. We have had Kasey on regular breathing treatments since her last bout of croup, so I hope this fever isn't an indication of the beginnings of croup again.
We had snow Sunday night into Monday. Monday morning Courtney's school district had a 2 hour delayed start, so that meant no preschool for her. Tuesday they also delayed for 2 hours because it was so cold. Which I thought was a very nice thing to do! So, no preschool again, which wasn't a big deal because Courtney had the appointment at the genetics lab anyway, so she would have missed class. So, finally today, she was back to school. I really wanted to go to Pilates at the Y, but since Kasey and I are both sick, we stayed home, and I took her to the doctor. I also got a lot of cleaning done. It was nice, but I can't wait to get back to working out.
Well, I am exhausted. This cold is kicking my butt. Hope all of you are well!
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